The 'New Normal'
So after the first seizure two weeks later S had a two seizures in quick succession so he got taken in to hospital. The faint hope we were given that the first one could have just been a random occurrence had vanished and we were sat watching and waiting for answers.

Over his time in hospital he had an MRI and an EEG and they were able to diagnose him with focal epilepsy after seeing constant abnormal brain activity in the left temporal region of his brain. This made sense with the right side of his body being affected in all of his seizures with some stiffness and in the initial one some shaking. We were fortunate that we got the diagnosis so quickly and a follow up appointment was booked to discuss the route forward as well as a 48 hour EEG too.

We left the hospital a few days later faced with our 'new normal' and with a million questions spinning round in our head!

Our 'new normal' was overwhelming, it was scary, it was all the things I didn't want to have to face as a parent. 

I didn't want my son to be in constant danger, 
I didn't want my son to have to deal with his 'abnormal bran activity' in his every day life. 

I spent hours and hours trawling the internet, looking for answers, researching and trying to find someone who understood what we were going through!

All I could do was pray and wait for the next appointment. 

As a parent you want to do everything you can to protect your child from harm or hurt but at that moment, after that diagnosis, I felt helpless...


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